Friday, October 26, 2007

Focusing on Feeding

--We got a little behind on updating and we apologize for that. We have been spending the majority of our time focusing on getting Daniel to eat as much as he can (or will).
--When we last posted we were headed to Vanderbilt Children's Hospital (what a wonderful place). We were hoping that we would be told that we were over-reacting and that the vomiting and diarrhea were common. We were actually told that the vomiting and diarrhea were not common and that had we continued to give Daniel the Peptamen he would have ended up passing blood. The doctor's gave Daniel Vital Jr. while in the ER and he tolerated it well (no vomiting and no diarrhea). We were sent home with a case of Vital and told to replace the Peptamen Junior with the Vital. We were told that if he did not tolerate the Vital that Daniel would be put into the hospital and we would really have to consider tube feeding.
--We called Daniel's GI doctor on Monday per our discharge orders. Dr. Arthur wanted to know how Daniel was reacting to the Vital. We told her (actually her nurse) that Daniel was not vomiting or having diarrhea. We told her he was drinking 3 cans a day. We also told her that Daniel's tummy was becoming bloated after drinking the Vital and he was refusing to eat and acting like his tummy was hurting. This was a concern to the nurse and she told us that she wanted to talk to the doctor and she would call us back. The doctor ordered a KUB (stomach x-ray). We packed up and headed to Vanderbilt for the 2nd time in 2 days. The stomach x-ray was normal, there were no significant signs of bloating.
--Dr. Aruthur contacted us on Wednesday and told us to continue with the Vital. She said that she had diagnoised Daniel with Failure to Thrive (FTT) and she was going to order a gastric emptying scan.
--The plan is to give Daniel Vital Jr. in place of formula and increase his calorie intake as much as possible. We will take him in for frequent weight checks to see if the high-calorie diet is causing him to gain properly. He will see a Nutrionist to help us in creating a hig calorie diet and he will be tested for Cystic Fibrosis. We are praying that Daniel will start showing a steady growth and we can avoid tube feeding. We also pray that the gastric emptying scan and Cystic Fibrosis test both show negative results and Daniel is healthy and just a "slow grower".
--We will keep you updated in the coming weeks as Daniel undergoes the test and we have weight checks. Please pray that Daniel starts growing steadily, that we (dad and mom) don't get discourage and loose our faith in God and that the doctors and specialist treat Daniel in the proper way.

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